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Rank: Advanced Member  Groups: Registered
Joined: 12/16/2009 Posts: 156
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Hi all
not shaw which bit to do my moan on sorry but i need to ask if any one has any ideas my Rummy DR has took me of MTX and diclafenic as they are causing me a liver problem, but since i have come off them the pain has gone up two fold and I can not put my last 3 fingers straight on my left hand has the pain is far too much, I go back to the hospital on the 5th Jan but any ideas to help with the pain till then.
Sorry to Moan but I am getting a little fed up with the pain, I am taking Pain killers but that is all at the minute.
Hope you all have a great Christmas and a Happy New Year
God Bless you All
Audrey
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Audrey,
Can you get in touch with your rheumy nurse at all!
Either the nurse or your GP may be able to give you a depo steroid injection to get yo over Christmas.
Or you could ask your GP for stronger pain killers.
Hope you can get something to help.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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yes definetely ask if you can have a depot steroid. up to 6 weeks of great relief when I've had mine. best used in times like this, between the DMARDs. my rheumatologist usually prescribes them, i would have to go to GP and ask for urgent referral for one before Xmas, if did not have a rheum clinic nurse to sort it out for me.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Hi Audrey
Pretty bad of your rheumy to take you off medication and not giving you any substitute. Certainly my gp has, on occasions, prescribed steroids when the pain's been really bad, so I'm sure that if you contact your gp he/she will be able to do something. Good luck,
Anthea
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 74 Location: North Lincolnshire
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I came off methotrexate the other week too, and i had a flare up because the etanercept didnt work by itself. it's a shame you had to come off and are now in so much pain. i also find that normal pankillers dont really help much, and apparently its because of the strength of drugs that were on like methotrexate. the only thing i can suggest really is lots of hot baths, or ice packs on swollen joints.
hope your feeling better soon
xxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Audrey,
You never have to apologise for moaning about pain on this site and sorry to hear that your rheumy has left you without any treatment; I agree with others, it's not on. I had similar problems with my liver and MTX and have been without meds since August. To cope with the pain I have had steroid tablets and jabs, and now survive on pain killers because the steroids have played havoc with my mood. In the meantime, I'm now playing the Anti-TNF waiting game.
Do you have to come off MTX completely and has your rheumy advised you on a new treatment plan?
Love,
Barbara
XXXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Audrey
Sorry your rheummy has taken you off mtx without a replacement to tide you over. I agree with everyone that you should have a word with your GP and the rheummy nurse. I have tramadol and oromorph to get me through times like this - as well as steroid jabs.
Take care
Love Jeaxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Audrey, I definitely agree with the depo jab idea. Do you have a rheumy helpline or nurse contact? They can usually arrange them for you without seeing rheumy. If you don't - try your GP. Hope you get something before Christmas. Take care.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Yes, a replacement med surely should have been offered, you poor love!
Usually mtx will take a while to get out of one's system but not always.
Perhaps a shot of steroid will suffice for the Christmas time? I am sorry they have left you in so much pain..
Much love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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ouchy for you Would be god if nurse gave you something else to ease pain over Christmas i ahd 1 last year steriod injection,lasted me to new year. u take care rest is good cold doesnt help much. hugs inky07 cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Did you manage to get anything from your GP or Rheumia nurse Audrey? There are no prizes for suffering pain as we all know all to well on this forum. I bet that the majority of us have survivied for weeks and months on a diet of painkillers, heat patches and wheat bags rather than go for help. Don't suffer, ask!
Hope that you are getting help now. preferably a steroid injection to keep you going.
Take care,
Eleanor x
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Rank: Advanced Member Groups: Registered
Joined: 12/16/2009 Posts: 156
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hi All
thanks for your advice the nurse gave me depo steriod but it has not done anything for me, went to see the orthotics dept for some more splints for my hands /wrists and he has given me much the same advice as your good selfs warm packs and pain killers and not to push my self to much at this time. when i went to the rummy last they said that I may have to go on injections for a while not sure which ones but will let you all know which when i get on them. Hope you all have a good Christmas and happy new Year will be reading all the info take care all of you. Hugs Audrey.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Audrey - it may be that the depo they gave you wasn't big enough. Can you ring up and tell them it hasn't helped?
Love Jeanxxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Audrey, sorry to hear you're still in pain. When did you have the depo - they usually take about 2-3 days to kick in.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 327
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Hi Audrey
Here's hoping that the depo does kick in and give you some relief.
Anthea x
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Rank: Advanced Member Groups: Registered
Joined: 12/16/2009 Posts: 156
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Hi all
it was about 5 days since she gave me the depo but will ring and ask if I can have another one but it will be Christmas eve so possible will not get an answer for a couple of days. it does help to be able to talk to some wonderful people like yourselfs as you all know what I am talking about. going now talk to you all soon.
Take care
Audrey XX
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